For those who find the Config Journey too much work, or who prefer to work from a more explicit model for managing ME recovery, MEMap Flavours is an attempt to find suitable frameworks for different types of approaches to recovery. Be warned though, each Flavour is designed specifically for those whose mindset or approach matches the name of that Flavour. So any one Flavour will suit only a minority of PWME...
MEMap Flavours gets your App configured with very little typing or effort. The idea is that we characterise common approaches that seem to have been successfully pursued by ME recoverers. If you think any of them seem right for you, instead of taking part one of the Config Journey (Frames config), you instead simply use the letter representing your chosen Flavour. This letter will generate Frames and Reframes for your App. In MEMap a 'Frame' is simply a way to clarify an issue, or a chunk or symptom of your illness. Putting a frame around something defines it, and gives it a separate identity of its own. For simplicity MEMap takes a very liberal interpretation of the term reframe. By 'Reframe' we mean: find the strategy, solution or aspiration that best takes the issue or symptom a Frame describes forward - or demonstrates the outcome you would like. When you configure the MEMap App using MEMap Flavours, the starter text of the Frames and Reframes in your 'Reframe Map' will be the text we have used to sum up the approach (the Flavour) you have chosen. You adapt this text fit to your own needs (and no doubt delete parts of it that don't suit you). It is written in the first person to save you the effort of converting it into the first person yourself. Obviously we have no idea what ideas and words work for you - but the Flavours concept may prove useful to save your energy or get you thinking. If you don't like the Flavour, you can configure another Flavour by attaching a different letter to your pin. The pin is what you generate by taking part two of the Config Journey: to add a Flavour simply add the appropriate letter to the front of the pin. Eg if your pin is 999, G999 would configure your App with the 'Going for it' Flavour.
- 'Going or it' - Flavour G This Flavour is an attempt to answer a question of this kind: "I feel strong enough to be really proactive towards ME, and I am willing to scan my life for any area AT ALL where stress could be minimised, or greater wellness added. If you collected key parts of the different successful approaches reported by ME recoverers into a single 'covering many bases' strategy, what might it look like?" MEMap does not cover supplements, drugs, treatment protocols or biomedical issues - naturally, clinicians who felt qualified and able would more actively add those kinds of elements. But Flavour G sticks to using good planning, clear thinking and creative management to really get to grips with ME recovery. This Flavour does assume that you have successfully established that your health can normally tolerate some base level of activity or exercise. There is NO intention that you exceed that base level of activity: at some points there is a simple recommendation to direct the energy resources you DO already have to maximise what they can offer you.
- 'My energy levels feel completely flat' - Flavour F This Flavour is designed for the period most people with ME have experienced, where energy levels are on the floor. Typically here, it is very hard to get any meaningful feel for the path towards finding more strength, even a small spark of zest or some real sense of health. It can be hard to make the effort to actively manage ME when the chances of finding better energy feel so distant. Flavour F aims to provide a framework to help navigate these periods, and offer some belief that they do pass and that it IS worth continuing to plant the seeds for recovery.
- 'Moving from load or stress towards gentle-on-self living' - Flavour S This Flavour is for those who see various sources of stress in their life and feel that, since ME seems to tolerate stress poorly, it makes sense to identify the roots of the stress and plant seeds for easier, more relaxed living. This pathway is one that appears to be key to the success of many ME recoverers: one of the main reasons MEMap exists is to help people spot the kinds of stress they experience and build routes to lifestyles which genuinely norish them.