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This page
explains the web 'Configuration Journey' which you can take on this website. This Journey is designed to
easily populate your MEMap mobile App with concepts you may find helpful and details about you and your
experience of illness. Before starting the Journey it's best to first absorb the guidance below in the
sections 'Configuration explained' and 'About Frames and Reframes'. If you are using MEMap as part of a deep
and concerted effort to get to grips with ME it may be worth and coming back to this journey a number of times
before finally clicking 'Configure'. On the other hand, skipping quickly through the Config Journey is ME
friendly (if you are interested in a practical approach, maybe just do the 'Practical' and 'Config completion'
pages - if your interests are more emotional, perhaps stick to the 'Emotional' and 'Config completion' pages).
Once you have
configured MEMap and your App is functioning successfully, you may wish to remove any trace of the info you
assembled during the Config Journey from your computer. Click the button Clear All at the bottom of this page
to achieve this. If the same device is going to be used by someone else to configure MEMap, or you want to
start again from scratch, click 'Clear All' before beginning.
After you have
been using MEMap for a while you may find that you want to add additional categories from part one of the
Config Journey to your App. Or you may want to send your thoughts about some of the categories to another
MEMap user. The section 'Send additional 'Sender' Frames to yourself or others' below explains how to do this.
In part 1 of the Config Journey you will notice that 'we' (not 'you') is normally used when describing the issues experienced when living with ME. That's because MEMap is patient-led: the words certainly apply to us - we hope they mostly work for you. Often the Config Journey states the obvious: it seems clear that we and many recoverers struggle to avoid things that we know set us back and to adopt things we know work pretty well. Don't be afraid to build maps that are merely 'high quality reminders' rather than 'inspired perceptions'.
Full configuration of MEMap on this website involves taking a 2 part journey. Rather
than the fiddly process of inputting information on your mobile device, you put this information and choices you
make into a computer or device of your choice. It is saved locally on your computer until you are done. Clicking
'Configure' on the Config completion page then generates a pin. The main (top right) menu in the MEMap App
offers a 'Configure App' option where you can use this pin to configure the App.
Since information is saved locally on your computer you must use the same computer and browser from
start to end of the Config Journey. Also it is essential to successfully complete the 2 stage browser test below
to ensure the browser you are using effectively saves the data you input. Finally, between starting the Config
Journey and clicking Configure, it is crucial that you do not go into your computer's Settings and change the
browser settings (eg privacy settings, clearing cached data), or use a 'private window'.
Part one of the Config Journey (which populates your app's 'Reframe Map') involves the 6 menu options at
the top of this screen, from, left to right(or top to bottom on mobile), 'Practical' to 'Manage the day'. Each
of these 6 sections has a number of categories of exactly the same format. There is a subject area, the chance
to opt in, an illustrative 'Buddy' example, a relevant quote from an ME recoverer, and the opportunity to put
your own 'Frame' around this subject area or issue - and begin to 'Reframe' it in your favour (more on this in
'About Frames and Reframes' below). If you keep clicking 'Save and Go Next' you will go through each of the 6
sections in turn. If you click the 6 menu options you can navigate the 6 sections in any order, missing any you
don't fancy.
Part two of the config journey takes place on the Config completion page. It involves 9 simpler
questions. These questions are designed to give you a racing start for building a Wellness Map. It is
recommended that you complete all of them to get a good illustration of how this map can work for you - but you
can opt out of anything that does not feel right. So long as you click Save before leaving every page, you can
break and come back to the Config Journey at any point. Turning off your computer or closing your browser will
not affect your data.
MEMap is designed to configure remotely. If there is someone you trust with your personal info who has a
bit of energy and is a bit IT literate, allowing them to assimilate the config process and manage things for you
is an option - wherever in the world they are. You may wish to read through the categories and tell them your
thoughts, or simply have them talk you through it. This might be the foundation for them to support your path to
recovery on an ongoing basis via MEMap.
Part one of the Config Journey (which populates your app's 'Reframe Map') asks you to create Frames and Reframes
for future use. A 'Frame' is simply a way to clarify an issue, or a chunk or symptom of your illness. Putting a
frame around something defines it, and gives it a separate identity of its own. There is no magic formula to do
this. Although MEMap offers what might seem relevant categories, the best Frames are the ones that meaningfully
describe a key part of what stands in the way of your health. Only your words, and often your own categories,
will achieve this.
For simplicity MEMap takes a very liberal interpretation of the term reframe. By 'Reframe' we mean: find
the strategy, solution or aspiration that best takes the issue or symptom the Frame describes forward - or
demonstrates the outcome you would like. Sometimes a Reframe may be a plan or a reminder that you feel does not
need a corresponding Frame. That's fine. But often a good solution or strategy can lose its meaning or potency
without a reminder of how you feel whenever it is not utilised. Some of the categories in the Config Journey
will seem to cover very obvious stuff. But the evidence is that PWME often KNOW what care they need to offer
themselves but struggle to DO it in practice. For these categories, creating a Reframe as a reminder of good
care planned, allows the corresponding Frame to be used later as a space to examine the factors that stop the
plan coming to fruition. For more on Framing and Reframing, the App's Reframe Map offers the chance to view
'Framing strategies'.
Parts of the journey may arouse upsetting or angry responses. It may be best to pass over these
sections. Alternatively, something that is upsetting may be very fertile ground containing an issue which needs
addressing. In this case quickly ticking 'Opt me in' and moving on may offer a useful chance to come back to the
issue at a better time. And generally, when you opt in during part one of the Config Journey, it is not
necessary to write a Frame or Reframe. The empty Frame will exist in your App after configuration, with prompts
about the subject area - and the same category heading as displayed in the Config Journey, so you can refer back
to this website where needed.
Second check: type a word into this box and click 'Save Test'. Then totally close your browser and navigate back to this page. If your word is visible your browser is set for configuration!
If your browser is in good shape click Begin Config to begin the Config Journey. Or choose to start with any of the sections in the menu above.
'Buddy only' config allows you to keep any data you have entered into the MEMap App (ie 'Your Bubbles' and 'Your Frames') but quickly add information to your App about categories in part one of the Config Journey. These will appear in the MEMap App as ME Buddy Frames. These Buddy Frames can be copied over into 'your own' Frames - where they will then be editable and have information about the subject area (category) they cover attached to them. To achieve Buddy only config, opt in to any of the categories you like in part one of the Config Journey but do not type anything. Just tick the boxes and Save before leaving each page. When you reach the Config Completion page don't bother about answering the questions on that page: simply tick the box marked 'Buddy Only', add your username and password and click 'Configure'. Then when you choose the menu option 'Configure App' in the MEMap App: after you have selected 'Web Journey Pin', tick 'Only configure ME Buddy'.
Where MEMap has already been configured or is in use, it may be useful to select new categories from part one of the Config Journey so new Frames can be added to the App without overwriting existing data. To achieve this, simply ensure the categories you want to add from the 6 pages comprising part one of the Config Journey have their boxes ticked and those categories you don't want to add are unticked (do this where it says 'Opt me in'). Then Save. Add any thoughts for the categories ticked, and save them. Finally return to this page, fill in your details below, click 'Send Frames' and note the pin. In your App choose the menu option 'Download Frames' from the Reframe Map screen, enter the pin with your username and password, and select and name location for these 'Sender' Frames when prompted. They can then be copied across to your own Frames by first navigating to that set of Sender Frames.
Before developing Frames to send from this device, it may suit you to clear Frame entries typed from any previous configuration or other use. Click 'Clear All!' to do this.
Your username:
Your password:
Recipient username IF you are not sending Frames to yourself: